Cure OGT

A foundation of Patients, Researchers and Clinicians around the world, joining forces to find treatment for a rare genetic disease – OGT X-Linked Intellectual Disability

Our Vision:

The Cure OGT Community envisions a world where individuals with OGT-XLID have access to the best possible care, support, and research opportunities. 

We strive to create a community of empowered individuals, families, researchers, and clinicians working together to improve the lives of those affected by this rare condition.

Cure OGT at a Glance
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Known OGT-XLID mutations
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OGT-XLID Research Conference 2024

Diagnosed with OGT-XLID?

The OGT Foundation Family Support Network has been created to help families connect and stand united to advance research and resources for OGT-XLID. Register today to join our network and make your voice heard for everyone affected by OGT-XLID.

News, publications and events

Our Community

OGT Community
Patients

Our patients are at the heart of our mission, sharing their experiences to propel research and drive awareness for OGT-XLID.

Researchers

Forward-thinking researchers lead the charge in unraveling the complexities of OGT-XLID and forging new pathways to innovative treatments.

Clinicians

Clinicians familiar with OGT-XLID provide specialized medical knowledge and compassionate care to ensure the best quality of life for our community members.

O-GlcNAc Database

Complete inventory of human O-GlcNAcylated proteins, O-GlcNAc enzyme variants repository, and tools for O-GlcNAc researchers and clinicians.

Get Involved

Your support of the Cure OGT fuels groundbreaking research into OGT-XLID, paving the way for transformative treatments and a healthier future.

Victoria Skripkina

Donate

Visit our dedicated Give Lively donation platform by clicking HERE.

Host an event

Fundraisers are a great way to raise OGT-XLID awareness in your community and raise funds for a cause!

Volunteer your time

We need community members and parents willing to become involved with our organization.