Cure OGT
A foundation of Patients, Researchers and Clinicians around the world, joining forces to find treatment for a rare genetic disease – OGT X-Linked Intellectual Disability
Our Vision:
The Cure OGT Community envisions a world where individuals with OGT-XLID have access to the best possible care, support, and research opportunities.
We strive to create a community of empowered individuals, families, researchers, and clinicians working together to improve the lives of those affected by this rare condition.
Cure OGT at a Glance
OGT-XLID Research Conference 2026
Diagnosed with OGT-XLID?
The OGT Foundation Family Support Network helps families connect and stand united to advance research and resources for OGT-XLID. Researchers also need families to take part in a medical study of how the condition develops over time. That record is the evidence any future treatment will be measured against.
News, publications and events
Personalized mRNA Therapy Shows Promise in Rett Syndrome
OGT Conference 2024 Results
The Promise of Emerging AAV Technologies for OGT-XLID Gene Therapy
Our Community
Patients
Our patients are at the heart of our mission, sharing their experiences to propel research and drive awareness for OGT-XLID.
Researchers
Forward-thinking researchers lead the charge in unraveling the complexities of OGT-XLID and forging new pathways to innovative treatments.
Clinicians
Clinicians familiar with OGT-XLID provide specialized medical knowledge and compassionate care to ensure the best quality of life for our community members.
O-GlcNAc Database
Complete inventory of human O-GlcNAcylated proteins, O-GlcNAc enzyme variants repository, and tools for O-GlcNAc researchers and clinicians.
By the Olivier-Van Stichelen Lab and Florian Malard, PhD – Jonah Kimi, MSc
Supported by the Medical College of Wisconsin
Get Involved
Your support of the Cure OGT fuels groundbreaking research into OGT-XLID, paving the way for transformative treatments and a healthier future.
Donate
Visit our dedicated Give Lively donation platform by clicking HERE.
Host an event
Fundraisers are a great way to raise OGT-XLID awareness in your community and raise funds for a cause!
Volunteer your time
We need community members and parents willing to become involved with our organization.